Healthcare IT Workgroup Tackles Privacy - InformationWeek
Healthcare // Electronic Health Records
10:15 PM
[Ransomware] Taking the Mystery out of Ransomware
Dec 07, 2016
Lost data. Systems locked down. Whole companies coming to a grinding halt. When it comes to ransom ...Read More>>

Healthcare IT Workgroup Tackles Privacy

Group seeks to balance privacy concerns with a healthcare system that facilitates and enhances care.

The HIT Policy Committee's Strategic Planning Workgroup spent much of its meeting this week debating how best to balance privacy concerns with the need for an open, "learning" healthcare system.

The group shouldn't put barriers in the way of people "interested in sharing their information and willing to take that risk," said Don Detmer, retired president and CEO of the American Medical Informatics Association. "We should not force privacy to be more important than health."

Just as people have the right to donate blood and organs but aren't forced to do so, Detmer said, they should also have the right to share their health information and even elect to receive a unique patient identifier. Jodi Daniel, director of the Office of Policy and Research at the Office of the National Coordinator for Health IT (ONC), commented that while the government can't take up such a charge, there's nothing preventing private sector entities from doing so.

Detmer went on to stress that any regulations the government enacts should make it easy for citizens to do the "altruistic" thing--to share their health information for use in research and clinical trials.

Patricia Brennan, chair of the College of Engineering Department at the University of Wisconsin, said the report the group was working on--the "Health IT Strategic Framework: Strategic Themes, Principles, Objectives, and Strategies" report--was tilting toward the privacy side. "Right now, it seems very restrictive to privacy and security as it relates to data exchange." She went on to discuss how privacy shouldn't interfere with "new knowledge development."

Dave McCallie, VP for medical informatics at Cerner, a healthcare IT vendor, came at the issue from a different angle, saying the group had done its job by "preventing harm rather than mandating the good." The focus, he said, should be on giving people choices.

Despite such assurance, Detmer wanted changes to the document which addressed his concerns. "There are some areas where current policy is really not helping us right now," he said.

Steve Stack, M.D., an emergency physician and member of the American Medical Association Board of Trustees, said a presentation he had recently seen by Dan Ariely gave him a new perspective on the group's work. If the group really wants to advance "a learning health system" and make information a resource to improve the health of both individuals and society, then "preserving our rights, liberties and freedoms is essential," said Stack. "But how ONC executes on this will make a profound difference because of the way the human mind works and how we make choices," he said. That will determine whether this takes off and facilitates care or becomes just an irritation. "We don't want to scratch our heads five to 10 years down the road and say, 'Gee, we wrote a great document, why didn't anything good come of it?' " Stack said.

Anthony Guerra is the founder and editor of, a site dedicated to serving the strategic information needs of healthcare CIOs. He can be reached at

Join us for a virtual event on strengthening IT security's weakest link: the end user. It happens Wednesday, March 24. Find out more and register.

Comment  | 
Print  | 
More Insights
Newest First  |  Oldest First  |  Threaded View
How Enterprises Are Attacking the IT Security Enterprise
How Enterprises Are Attacking the IT Security Enterprise
To learn more about what organizations are doing to tackle attacks and threats we surveyed a group of 300 IT and infosec professionals to find out what their biggest IT security challenges are and what they're doing to defend against today's threats. Download the report to see what they're saying.
Register for InformationWeek Newsletters
White Papers
Current Issue
Top IT Trends to Watch in Financial Services
IT pros at banks, investment houses, insurance companies, and other financial services organizations are focused on a range of issues, from peer-to-peer lending to cybersecurity to performance, agility, and compliance. It all matters.
Twitter Feed
InformationWeek Radio
Archived InformationWeek Radio
Join us for a roundup of the top stories on for the week of November 6, 2016. We'll be talking with the editors and correspondents who brought you the top stories of the week to get the "story behind the story."
Sponsored Live Streaming Video
Everything You've Been Told About Mobility Is Wrong
Attend this video symposium with Sean Wisdom, Global Director of Mobility Solutions, and learn about how you can harness powerful new products to mobilize your business potential.
Flash Poll