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Regina Holliday (@ReginaHolliday)

Twitter Bio:: Regina Holliday is the founder of #TheWalkingGallery, mother, artist, author, blogger, speaker using paint & #hcsm to promote patients rights within medicine.
Location:: Washington, DC
Website:: http://ReginaHolliday.Blogspot.com

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A few weeks ago, with a combination of alarm and excitement, I realized that I would be presenting my research about rare-disease communities to a roomful, not just a row full, of actual rare-disease patients and caregivers.

This was no academic exercise. It was as if I had painted their portrait and shown it with confidence to other audiences, but that day I’d hear from the portrait’s subjects. Would they see the likeness?

I prepare carefully for every speech, but I knew that the