Comments
Chronic Disease Patients' Top Online Privacy Worries
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Ariella
50%
50%
Ariella,
User Rank: Ninja
5/8/2014 | 10:28:35 AM
Re: Majority Rules
@Alison, yes, I agree. It's tough to trust people who prevent you from seeing reports on your own health. And it is important that clear directions be provided about how to access the information.
Alison_Diana
50%
50%
Alison_Diana,
User Rank: Author
5/8/2014 | 10:23:48 AM
Majority Rules
That's a slim majority by any measure -- but I suggest healthcare organizations have the opportunity to increase that margin by educating consumers on how to access their records; showing patients how to correct any errors that appear in their records, and stating -- in simple, non-legalese, how they use (and don't use) patient data. As we just saw from Facebook/Moves (my story will post on InformationWeek soon), terms and conditions can change fast. That's why patients may be more likely to trust their healthcare provider than a private or public vendor (I know I would). 
Alison_Diana
50%
50%
Alison_Diana,
User Rank: Author
5/8/2014 | 10:21:05 AM
Re: records
I've spoken to a lot of healthcare organizations about their implementation of healthcare portals and mobile apps but if patients don't know how to access their records, then this investment isn't worth much. I wonder how providers educate patients to ensure they know how to access and use this data, and measure their results. It does appear, at least from this report, there's much more work to do!
Ariella
50%
50%
Ariella,
User Rank: Ninja
5/7/2014 | 12:52:35 PM
records
"Of the chronically ill who had not accessed their records, 55% said it was because they didn't know how."

Clearly, that is the major deterrent, based on the responses here. It's not enough to have it available in theory, people have to be shown how to access it in practical terms. 


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