Sharing Electronic Medical Records Still Too Hard
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User Rank: Apprentice
6/17/2013 | 9:23:43 PM
re: Sharing Electronic Medical Records Still Too Hard
I think most people around the world will have our money in various places, our loose change in our pocket, an account for our monthly outgoings and if we are lucky others accounts to help on a rainy day.

But, we do have control of all our accounts to move our money around as needed.

In the healthcare industry, It is a bit like the UK Sterling Pounds and US Dollars, we can't use both together.

Hence the suggestion of the SnomedCT, it is one of the few universal healthcare currency that each system could convert to their own isolated coinage.

As patients, we do need to automate the process into a format that we can understand, a simple overview with detail as secondary data which current healthcare systems use.

To make health data friendly for patients we need to explore alternatives to words on screens.

I am not a company, I am not out to exploit and to make money, I have no commercial product to sell, but I share with you how I record my personal health data (An example only not my true record).
User Rank: Author
6/17/2013 | 7:34:14 PM
re: Sharing Electronic Medical Records Still Too Hard
There's definitely something to this -- answering the question of what data as opposed to all data. But at least in this conversation, the participants greeted the notion of a personal health record that the patient controls with pretty universal skepticism because of the challenge of getting data into them, and the failure of such efforts to date. I compare it to personal finances -- most of us have our data spread out in lots of places (bank, 401k, investment funds, insurance), not consolidated in one place. Or is that only me that does that with their finances?
User Rank: Apprentice
6/17/2013 | 6:55:34 PM
re: Sharing Electronic Medical Records Still Too Hard
Do we need every single Blood Pressure, every single vital sign into a shared Electronic Patient Record?
At the moment, in IT Healthcare throughout the world, there is thought that ALL data should be transferable so various healthcare suppliers can see on their own systems micro details of information.

But in the fog of this detail, there is a person, a patient, that seems to be forgotten.

For a patient, it is our problems, diagnosis & results, medication, Physician care, nursing care, our own patient (carer) delivered care. Then there is the problems associated with all of the above, our Allergies, and other complications.

Why have large Hospital Information Systems trying to talk to each other, when we could have a repository based on the patient. Use SnomedCT codes from one system into a patient personal health record system, and then feed this to other Hospital/Physician systems.
A person, the patient doesn't need detail, just high level information. Does a Physician/Doctor need 100% of the time every micro detail?
For extracting micro details this information could be linked to the SnomedCT code as an RTF PDF or similar documentation so the patient could if they wish read any detail (such as the patient discharge summary and other documentation).

The patient would then have control to share his/her data with anyone they need to.

If hospitals or physicians need further details they could manually extract any data they need from the RTF/PDF along with the SnomedCT codes. Gradually Hospital systems could automate the process if needed.

But the biggest problem I fear is the Healthcare Industry "letting go" of the patient information and empowering the person to look after their own data.

Yes we will need the tools to do this, in a simple format that we can understand, and probably have the automated tools to convert SnomedCT codes into information that we can use and add to. Yes it might not need to be Clinical terminology in English, for most of us have no degree in medicine or a PHD in C# let alone English as our native language. SnomedCT might not be the best code to use, but at least its a start.

The global population is growing up with IT, we are children no more, and we need to take responsibility of our records like we do our finances. Perhaps then patients may start to work with the Healthcare industry to fully understand and share the information. This might then help reduce the financial burdens we find ourselves in today.

It will not be cheap, it will be difficult to income generate focusing on the person, but think, if we the patient were recording some of our own care (Tramadol ETC) how clinically rich our data would be. It would bring a whole new meaning to exploring population health and research.
Yes, there are many barriers, there will be sceptics, and not all will want to share, but building on trust, transparency, changing the focus to the patients needs we might start this journey in "Sharing Electronic Medical Records".
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