Re: Safety and security
I've seen articles that demonstrate how much medical information is out there based on our own social media posts. Software can troll through Facebook, Twitter, etc., to discover all those posts about headaches, flu, stomachaches, etc., and determine who has what and when. I do worry about the patient-focused support groups for chronic conditions -- online forums hosted by healthcare providers, pharma companies, or patients. While they are generally a great idea since patients (and caregivers) can learn about new cures and treatments, best practices, get mental and emotional support, and educate themselves about the condition, I do wonder just how much information is accessible about members if somebody wanted to learn that data for nefarious reasons.
OTOH, a number of people tell me a growing number of patients are open about their conditions, hopeful their transparency will prompt more research, understanding, and treatments. As with everything medical, I believe it HAS to be transparent and opt-in: If you want to share information, go for it -- but that decision has to be in readily understandable non-legalese and must be up to the patient.